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11/6/2007
10/27/2007
I almost forgot to mention that Katherine and my parents threw me a surprise congratulation celebration. Below is a picture of the cake they had. Thanks Again! |
10/26/2007
First, if you have written me congratulations on my diagnosis and I haven't written you back yet, thank you! My family and I are very thankful for everyone's prayers, love and support these past few months. Life is good! The past week, since my last post, Katherine and I have been taking it pretty easy. I have spent time to organize the files on my computer and catch up on sleep. One task that has been time consuming is organizing the pharmacy receipts. I thought my insurance company automatically reimbursed me on prescriptions but I have to submit each one separately for reimbursement. We have spent a good part of the week going through six months worth of receipts to submit to blue cross. I finished entering August into the computer tonight. On a very celebratory note my grandmother turned 101 this week, August 24 th . I wasn't able to see her but she says she is going to have a real party next year to celebrate. I'm going to hold her to it. Happy Birthday Grandmother! Today I had a Fast Track. Overall my counts were good but my white blood cell count was the lowest it has been since I started chemo. It isn't dangerously low, but low enough where the nurse told me to stay away from crowds, children and sick people until the end of next week. This somewhat limits what we can do for Halloween but we still plan on finding something fun. There are few haunted houses that stay open through next weekend we plan to go to. Again, thank everyone for stopping by. I put a few pictures below for everyone to enjoy.
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10/17/2007
CURED!!! My tests came back showing the cancer is gone! Dr. Fanale said I have been one of the healthiest most phenomenal cases she has seen. It has been a long road but it looks like I made it. I still have two rounds of chemo left in my regiment, this to get any stray cells that may be lingering and then another round of tests. But then I'm coming home! Hopefully before Thanksgiving. For follow up, I will be visiting every three months for three years to have my tests rerun. This to make sure I am staying in remission. Then they will be rerun once a year for the rest of my life. Again, I am one of the favorite clients of my insurance company. There is scar tissue where the tumor was, which will continue to give me some back pains. But besides this I have a complete bill of health.
Thank everyone who has prayed and given support. I couldn't have done it without you! God Bless! Love Slate
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10/16/2007
For over the past week I have been having horrible head and neck aches. These are a side effect of my last Lumbar Spinal Tap. Dr Groves explained, a week after the procedure when I started complaining, that the head and neck aches can last up to two weeks. The recommended treatment is for me to lie flat on my back and drink lots of caffeine. So for the past week I have spent most of my time lying the couch drinking Diet Coke. The middle to end of last week was really bad, I had to cancel some appointments because the pain too intense to go anywhere. Fortunately over the weekend the headaches have gotten much better, but my head still hurts if I bend over too quickly or turn my head real fast. It feels almost like a bad case of whiplash. I met with my Palliative care Doctor's yesterday, the Doctors who are responsible for my pain management and overall care outside of my cancer treatment, and they explained in more detail the science behind headaches. The first part of my spinal tap involves draining 1/12 th of my spinal fluid so it can be tested for cancer, which it is clean of. This spinal fluid is what my brain and spine rest in and functions as a shock absorber. Once this fluid is removed, the nerve endings connecting my brain to my skull can become stretched and pulled, due to gravity, until the body replaces the fluid. This is why lying on my back relieves the pressure. My Doctor went on to tell me she has had patients with these side effects for up to three weeks after their spinal tap. I will be having my second to last---hopefully, please pray---Chemo treatment this Thursday or Friday. The plan is then, twenty-one days after this one I will have one more round then another series of tests run. If everything has worked, I will be in remission and can come home. If I still have a tumor and/or it has become immune to my current Chemo routine, they have already planned to put on another chemo treatment called RICE. However, I am feeling very positive that everything is working and I will be home before Thanksgiving. Once I am in remission I will still be visiting every 6 weeks to three months for tests to make sure I am staying in remission. I believe this frequency will last for one year then change to every six months for the rest of my life. Blue Cross Blue Shield loves me. Also yesterday, the Doctors gave me an early report from my CAT scan from last Friday. The scans show no tumors in my Lymph Nodes, which means my cancer is not spreading. Woo Hoo! Tomorrow is going to be a busy day, I have Pet Scan at 6:00am which lasts two hours. I was supposed to have had this test last Friday but I accidentally drank the wrong kind of water before the scan, flavored water, and it had to be rescheduled. I then have a Fast Track at 12:00 and meet with Dr. Fanale, my oncologist or Chemo Doctor, at 1:00. She will give me the official report on how my progress and test results. My parents are flying in tonight to make this meeting. It is going to be great to see them, I have been incredibly home sick lately. I received an email today from my Dear friend, Nancy Cammock who is also fighting cancer. Her CAT scan just came back showing the tumors as “smaller and showing signs of death”. It is great to hear this positive news, Go Nancy! I also received an email from a friend of the family, Elaine Jenkins, whose cancer has returned and she will be starting Chemo again next week. Please say a prayer for both of these ladies. It has amazed me how much more, and for how many people, I now pray for. Being diagnosed with cancer really changes a person's outlook. Go power of prayer! Hope everyone is doing well. Thanks for stopping by and Take Care! |
10/8/2007
I had my Last spinal tap, or intrathecal chemotherapy injection, last Tuesday. This was my 5th one. My Doctor, Dr. Groves, tells me he has done thousands of these without serious incident. But before every procedure I have to sign a release form saying, among other things, that I release them from all liability of pain, meningitis, headaches, nerve damage, paralysis and death. It is not a very comforting form to sign minutes before a rod is placed into the area of spine that runs to my brain. In having all these spinal taps, I experienced one interesting example of experience trumping technology. The 3 rd procedure, the only one not done by Dr. Groves, was a guided procedure. This means a CAT scan was used so the Dr., whom in my case I think was younger than I am, could see my spinal interior during the procedure. After half-an-hour plus and attempting two different locations, she aborted the procedure because she was unable to draw any fluid. In contrast, Dr. Groves does his by first marking my back with Betadine, to bring out the contours of my spine and then choosing a location to guide the rod in. He says its “by feel” when he knows its in the correct position. The time of insertion to completion is about 10 minutes. This ability is a good example of who your doctor is making a big difference. I don't know if they are related, but starting Thursday I began having headaches. I normally don't get headaches so this might be a result of the spinal tap. They have reoccurred every afternoon or evening since Thursday. They are not very painful --more annoying then anything else. But they, or the medication I'm taking to combat them, zap the energy from me. Katherine is worried and wants me to see Dr. Groves about them. She emailed their office last night and after speaking with the nurse today I learned the side effects from the spinal tap can last up to two weeks. She told me to drink a lot of caffeine and lie down.
I will find out the results of the tests on Monday. Which is a lot faster then anything I experienced in Birmingham. It took about two weeks for me to learn the results of the MRI's and X-Rays taken at St. Vincent's. There is a chance, a very small chance, that if the tests show the tumor is completely gone, I might be done and can come home early. Again, this is a long shot but still a shot. Plus, Katherine says, “NO!” For some reason, she wants me to go through all 8 rounds of chemo to make sure we kill all the possible stray cancer cells. So, like I said it's a small chance. Also in the news, Katherine got her new laptop from her dad today. It's a top of the line Eurocom (top of the line computer brand) that is a couple of years old. So, it is still pretty cutting edge and nice to look at. We were able to watch the Pay per View of Alabama vs. University of Houston game on our Direct TV system. Since its not too far, we have thought about going over to the University of Houston and putting up some Roll Tide flyers this week.
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10/2/2007
I had my 6 th round of chemotherapy last Friday. We arrived at 12:00pm, were taken into the room about 1:00 and treatment started about 1:30. We left just before 9:15pm. Below you can see a picture of me lying in bed eating a late lunch. I had to go back on Saturday at 8:30pm for an immune booster shot; these shots have to be given approximately 24 hours after my chemo treatment. The side affects from this treatment have been pretty mild. The worst, so far at least, has been the nausea, which did a heavy dent in my appetite Saturday and Sunday. I am told this is a result of my body trying to get the poison out. Today I have my last Lumbar Spinal Procedure. This is where they inject the chemotherapy directly into my spine as an insurance in case the cancer makes it in there. Given the shrinkage of the tumor, this has become much less of a concern. Of everything I have been through this procedure is probably the one I hate the most. Given that it involves a small rod being driven into my spine, and 1/12 th of my spinal fluid being drained while chemo is inserted. The side affects are usually a mild headache for a couple of days. I guess this procedure still makes me more nervous than I would like to admit. I didn't sleep a wink last night thinking about it. Again, thank goodness this is my last one. I updated the “about my cancer” page with the history of my doctors and diagnoses. You can read the updated version here. |
9/27/2007
Sean left on Tuesday; we had a lot of fun times while he was here. We ended up playing chess almost the whole time. After three days we were tied 7 to 7. The unfortunate part is Katherine was extremely bored while we played. In fact, we literally put her to sleep more than once. Sorry Katherine. Ms. Alabama dedicated a song to me at the Alabama Tourism Bureau's annual conference. I tried to upload her performance so everyone could watch in but it is a very large file at 133 megs. I kept getting error messages trying to upload it. Marylyn Stamps, who is a very close friend of the family and an employee at the Bureau of tourism, recorded her performance. I thank Ms Alabama for thinking of me enough to dedicate her song. I also thank Marylyn for recording the performance and reading my comments at the end (After she puts down the camera she stands up and reads comments I gave her). Yesterday, I had a fast track for my upcoming chemo treatment. My port didn't work for drawing blood, and the lab technician had to use a needle to get it. I hate needles. The tests came back with everything normal; the most notable part is my liver counts went down. Last week those counts were a little high. The doctor said I could have a little bit of red wine sometimes, so I didn't think having half a beer would be bad. It's scary such a small amount has such a noticeable affect on my system... Won't be doing that again! With all my results being good I am ready for the chemo treatment tomorrow. I was given one piece of mixed news; the bad is that I am scheduled for a Lumbar Spinal Procedure on Tuesday. The good part is that this will be last one. In my opinion the Spinal Tap chemo treatments have been worse than the liquid chemotherapy treatments. Having a needle stuck into my spine is a very unpleasant experience. I am thankful I have one of the best doctors at the hospital performing the procedure. I cannot express how much I am dreading this procedure and how thankful I am it's my last one. After my Fast Track visit, since my blood wasn't drawing through my port I made a visit to Infusion Therapy, the place that installs and manages the ports. During this visit I learned that if my port isn't giving a proper blood return, it couldn't be used for my chemotherapy treatment. Which means an IV will need to be inserted for the seven hours my treatment lasts. Another needle! The good news is half of my port works fine. It flushes great, which means fluids can be inserted. In other words, you can put stuff in me but can't get anything out. The nurse at Infusion therapy explained a blood clot had probably formed at the mouth (the part inside me) of the port, stopping the blood return. Yesterday they injected a drug, forgot the name but nurse today nicknamed it Drano, to break the clot. If it worked partially, opened only 1 line, they would replace the port, called an exchange. This wasn't an appealing option either considering it involved putting me to sleep and running a new line into my vein. Fortunately, today when I went back to Infusion Therapy to see if the Drano worked, it gave a nice blood return. So I am not going to need an IV inserted for chemo or be put to sleep for a new port. This was a big relief. I created a page about my cancer and included pictures from my MRI, CAT and PET scans. If you don't like to see medical images I strongly advise you not to visit this page. In other news Katherine has been an outstanding chef this past week. She has used her inside grill for Tilapia, Salmon, Orange Roughy and tonight Scallops. Dinner has been outstanding! Thank you for stopping by, God bless.
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9/22/2007
9/15/2007
Well, its been a week since my last round of chemo and the Crimson Tide Won. My Potassium was low this week so they had to give me some horse pills and an IV drip into my IV line to get my levels up. The drip looked liked a baby bottle and went into the IV line inserted into my arm for three hours. Very weird experience to look at it but Katherine watched the time and I didn’t have to have in it there any longer than necessary. Another game today, Woo Hoo, its on ESPN too Can’t get much better than this. In other news I have been playing a computer game called Oblivion which my computer messed up today and I need to start over. Fortunately I wasn’t that far into it so it shouldn’t take me too many hours to catch up where I was. Update: the my saved game files were still there after I reinstalled the game. I didn't have to replay everything to get to back to where I was. Katherine is doing well and all is good on all other front. Thanks for stopping by. |
9/8/2007
5th Round of Chemo Today. Wish me luck ROLLTIDE! |
9/4/2007
First part of the day was interesting; work crews cut the water main off to the entire apartment complex (over a 1000 units) to work on a telephone pole at about 9am this morning. No notice it was going to be shut off. It wouldn’t have been such a big deal except I needed to go Infusion Therapy to have my pic line bandage changed and I haven’t showered in 2 days (when all you do is stay in the apartment resting you can get away with this). Finally at 3 my Mom and I decided I would just have to stink and we were ready to go get the bandage changed. And as fate was sure to provide, as soon as we were walking out the door the water came back on. So I took a quick shower and we went to the hospital with me not smelling like a pig pen. God my father walk through my house and take away all my worries and illnesses in Jesus name Amen
Thanks for stopping by Slate and Mom |
9/2/2007
I was discharged from the hospital on Thursday, for a total of 8 days since I was admitted. I am still very tired and sleeping most of the time but doing well and getting better. The Dr’s best guess is I had a very early stage of pneumonia which the antibiotics wiped out before they could get a good sample of. But I had all the classic symptoms and responses so that what we are going with. Some of the tests they ran to figure this out were not fun. Thanks for stopping by. |
8/24/2007
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I'm feeling much better,
but it looks like I will be in the hospital until Monday at least. It
looks like they caught an early stage of pneumonia in my right lung.
They’ve been giving me heavy doses of antibiotics, and I think it’s
clearing up. Monday morning they are going to give me an X-ray. If that
turns out good and my fever continues to stay down I think I can go home.
If not --more tests will be needed. If I continue to feel the way I’m
feeling now, I should be going home Monday. I’m almost eating complete
meals again!
Thank you all for keeping
me in your prayers and thoughts. I continue to hear of so many people,
churches, Sunday schools and other groups praying for me, and it continues
to blow my mind. Thank You, Thank You, Thank You, Bless You!!! Please
know that I say a prayer for everyone to be ok, and for God to help anyone
who needs it.
Love you all,
Slate
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8/22/2007
I still have my fever, 5 days now, so Dr. Fanale wants me to go to the emergency room and be admitted to the hospital before 8:30pm tonight. I am not looking forward to this but I have got to do what I have got to do. I just hope they can quickly figure out what is wrong with me. Slate |
8/21/2007
Hello everyone, As of right now, overall, I feel OK, not great, but OK. My temperature is still hovering around 99.5-103. My nausea for Saturday and Sunday was horrible, the worst it could be. I have eaten 2 bowls of rice and bowl of Chicken broth since Saturday and I’m still not very hungry. Today the nausea is a lot better and I haven’t had to take nearly as many pills to keep it under control. I am going to try and eat some Chicken Soup for Dinner. I believe I can do it! Thanks for stopping by, and God Bless.
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8/14/2007
The New Computer will be here Thursday! After it’s loaded and configured updating the site will be a lot easier again. As for me, right now everything is going good. I believe I am past the worst of the side effects from my last round of chemo. Today was also the last night of my taking the steroid part of the treatment. For five days after the liquid is administered I take heavy doses of Prednisone. This the P in The R-CHOP program I am on. I have learned that heavy does of steroids make you hungry.Thursday is Lumbar Spine Chemo Injection day. This time it will be fully administered by the Lymphoma department, no more Dr. Groves. One other difference, this one is supposed to be a guided injection, where there is a machine scanning me as they administer the injection. Before, Dr. Groves painted the vertebrae and inserted the needle between the correct ones. I don’t know why we are using a machine this time but I am curious enough to ask. I will post any pictures we get.
Thanks for stopping by,
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8/11/2007
So far my fatigue isn't keeping me in bed much. For the most part I'm doing a lot of reading while Katherine works on her grad program. She is finals until the end of next week. Between her care provider time and finishing her classes she has a full plate right now. I couldn't ask for anyone to give more than what she is giving me right now.
We are still juggling computers and I am told my new one will be shipped no later than Tuesday. Until then, I am way behind on responding to email and this projects but will get caught up once it arrives.
Thank you for stopping by and take care,
Slate |
8/7/2007
| Bad news! The fan doesn't sound like it is running correctly and the bottom of the case is hot. Given this, and other problems I have been having, my guess is she is overheating and the emergency heat cut off is shutting it. She will stay on for about 10-30 minutes in safe mode before completely dying and loosing all power without warning --which has given me just enough time for this update. We are also having problems with Katherine's power supply. Her charger has a broken pin and it only makes a connection when plugged in the computer at a certain angle. We can still use the computer on battery but it is difficult to charge it back up. I called Alienware today, and my new computer might ship this week. I explained our situation and they said they would try to hurry the construction. I am probably looking at next week before I have my new system running. I will try to get another update up before the but I'm juggling here. In other news I have my fourth round of chemo on Friday. Thanks for stopping by, will keep everyone updated as technology permits. |
8/5/2007
Wednesday: We moved into our new apartment and love it. It’s amazing how much small stuff we have already acquired since moving out here. It took three trips from the hotel to the apartment to get everything. A large part of which are clothes and items my parents have left so they don’t have to carry as much when traveling back and forth. 8:45 AM FAST-TRACK LAB COLLECTION - Lymphoma Clinic 6th Floor near Elevator B. As you can see, there is 20 minutes scheduled for my second Fast-Track visit before my next appointment. This visit usually lasts between 20-45 minutes depending on what I go over with the Doctors and/or Nurse. While possible if everything goes right, 20 minutes is not a realistic amount of time for the appointment. I explained the time constraints with the Lymphoma staff and we worked it out so as long as I was back before 12 they would probably see me. If I didn’t make it by then, it would be later in the afternoon. They are very firm about the lunch schedule. While my Red Blood Cell count and Hemoglobin counts are I low, they are considered within a healthy range for a cancer patient. The Hemoglobin was the one my nurse spent the most time explaining. From what I understand, Hemoglobin is the part of the Red Blood cells responsible for carrying Oxygen from the lungs to the rest of the body. The low counts of my Red Blood Cells and Hemoglobin are likely the source of the fatigue I experience sporadically throughout the day. It makes sense that if my body is low on cells transporting oxygen I would be getting tired. In a nutshell, the big purpose for these Fast Tract visits is to make sure I don’t need a blood transfusion of these important elements. Which I don’t, I am a long way from it. Slate |
7/31/2007
As I write, Katherine and I are packing up to move into our new apartment. This will be our last night at the Holiday Inn, which has been a great home for these past several weeks. We have made friends with many of the staff and their hospitality has been second to none. If anyone ever needs to stay at or near MD Anderson Medical, you will not find a more dedicated team of people making up a first rate service. They offer everything from a place to stay to full shuttle access to every part of the hospital complex. But we are very happy about getting out own place and once again having an oven to cook with. Slate and Katherine
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7/28/2007
Hello Everyone,
This is my third spinal tap and second injection using this treatment (I am on two treatments from two different departments), and when they first proposed it, it was explained as extra insurance in case the cancer progresses further. They say this is increasingly unlikely, but if it did, I run the risk of brain cancer. From one perspective, the procedure is like paying for extended rent-a-car insurance. You don’t really want it, you don’t think you are going to need it, but you are glad you have it just in case you find a big scrape down the side of the car after a movie. The entire procedure lasts about an hour and half and breaks down roughly: Dr. Morris Groves, who is Director of Neuro-Oncology in the Brain and Spine Center (a completely separate department from the Lymphoma department), is the one who performs my procedure. This appointment was in the Lymphoma department, so he had to make a special trip from the Brain and Spine Center, 6th floor to 2nd floor. Normally, the doctors or nurses in the Lymphoma department handle this procedure. It’s considered fairly standard and routine, but, due to the sensitive location of my tumor, the Brain and Spine center began giving me the injections. I have been very thankful and privileged that Dr. Groves has been handling it for me so far (VERY, VERY, VERY THANKFUL –I have full confidence in every member of the medical teams working on me, but… IT’S MY SPINE!!! Oh, have I mentioned I have a phobia of needles?). This time they injected Cytarabine a different drug from the last spinal injection. Because of the doctor’s busy schedule, preparation for the procedure didn’t begin until after 11:00, so Katherine and I spent a lot of time in the waiting room reading. We also waited until after the procedure to finish the Fast-Track lab appointment. After marking my back up, injecting the local anesthesia, taking the spinal fluid, and injecting the chemo, we were done with the actual procedure by 11:45. I rested in the room until close to 1pm, and then we went over my blood work. My thanks to everyone who was involved in the procedure. Dr. Groves, APN. Monica Gilliam (who goes by Mona), and Nurse Goley Richardson. Thanks for stopping by, Slate
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7/26/2007
Hello All, I'm feeling much better following my last round of Chemotherapy from Saturday. Sunday was ok, but Monday and Tuesday were pretty much bad days. Today, I would say I'm about 80% back to normal but still fatigued and finding it difficult to concentrate on any one task for too long. For Monday and Tuesday, my nausea wasn't as bad as last the treatment --but I also hit the anti-nausea meds a lot earlier and harder this time! The doctors tell me I am still holding up above average but as the treatments progress, the fatigue and side effects will probably increase. The good news is the next treatment, August 11 th , will be my fourth, which means I will be halfway done! What do the side affects of my chemotherapy feel like? The closest I can compare it to is the general yucky-ness felt after a bad case of the flue. Thirsty, tired, aching, depressed and that general not so good feeling that you just can't shake until it goes away. I have defiantly felt worse but the side affects tend to linger for several weeks following treatment. My parents went home today, they stayed an extra day to make sure I was ok. Again, I cannot express how much their support and commitment to my health has meant the past several months. The same is true for Katherine. It's one thing to know someone is always there for you, its another to actually experienc e them being there. All I can say is that it feels PHENOMENAL!!! Below are a couple of pictures I thought people might enjoy. The Left: Katherine and I were… (“Oh, Slate, don't give the suspense up so quickly!” -- written by Katherine while editing on promotional set at Edward's Cinema. The 2 nd picture is of my father reminiscing with a distant cousin he ran into at the MD Anderson aquarium. Who knew? Thank you all for reading; hope all is well with everyone! Love to Blessings to All, Slate
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7/23/2007
Hello Everyone, Here is a recap of my weekend in the world of my cancer treatment. Friday, Katherine, my mother and father met with my Lymphoma Oncologist, Dr. Fanale. The following is the update: The results of the scans show the tumor shrinking and pulling back from the spine. The treatment looks like it is working and everything looks great. Even though the progress report is excellent, she is still anticipating my needing the full 8 rounds treatment to make sure it never comes back. I realized how close this problem was to being a lot worse. The tumor has been sitting and squishing the second layer of my spinal cord. It had/has also been growing up the nerves leading into my spine. In particular, it was trying to grow into my cerebral cortex, the part that holds the spinal fluid that my brain sits in. She explained if the lymphoma made it into the spinal fluid, I would have been looking at cancer in the brain and the rest of my spinal chord. I learned if I had not started treated when I did, it is likely of the cancer would be reaching this stage by now. What's really scary is that I was trying to get help for 9 months before I ended up here. If I hadn't started treatment when I did, things would have been A LOT worse! Close call!
others giving up their day just to be with you, even when they don't have to. I have noticed myself a lot more tired following this round of chemo. Today I have been sleeping a lot. At 5 I had to go to the hospital for a booster shot. This is one they stick in the back part of my shoulder, we have pictures. We parked in the parking deck and Katherine tried to validate the ticket before we saw the drs. The idea was that it wouldv be cheaper to validate now, then wait until we leave when the price goes up. It was a noble effort but the idea didn't work. We had to go back up to the validation machine and get a new ticket. That's all for today. This week I am going to work on making this site look nicer and more functional. Thank everyone for stopping by and readying, Slate
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7/20/2007
Good News and more coming tomorrow. We met with the Dr. today and the therapy is working!!! There will be more posted tomorrow. We love you all, God Bless! |
7/19/2007
Guess what? IReallyHateCancer.com is online for the first time! Guess what else? My name is Slate McDorman; I have cancer and hate it! But after living the past seven weeks in Houston while receiving treatment at MD Anderson Medical Hospital, I realize how fortunate I am compared to so many others who have similar stories. This site will serve as my portal to friends, family and the world on the latest news of my condition and what Katherine and I are up to in Houston. |
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